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Canadian Eating Disorder Priority Setting Partnership 
 

Who are we?
 
The Canadian Eating Disorder Priority Setting Partnership (CEDPSP) is a national project funded by the Canadian Institutes of Health Research (CIHR). The CEDPSP is being led by Dr. Nicole Obeid, Lead of Research and Outcomes Management for the Eating Disorder Program at the Children’s Hospital of Eastern Ontario, and Dr. Gail McVey, Director of the Ontario Community Outreach Program for Eating Disorders at the University Health Network in Toronto. Other members of the investigative team include Dr. Mark Norris, an Adolescent Health physician at the Children’s Hospital of Eastern Ontario, and Wendy Preskow, Founder and President of the National Initiative for Eating Disorders (NIED).

The CEDPSP is supported by many other individuals and organizations. For a list of Partners and Steering Committee members, please follow the tabs on the left.

Goals and Objectives

The aim of the CEDPSP is to identify and prioritize unanswered research questions about adolescent females and women with anorexia nervosa from the perspectives of those with lived experience, caregivers, and healthcare professionals. By engaging these stakeholders in a meaningful multi-step guided process of consensus-building, the goals of this project are to arrive at the top 10 research priorities which are the most important to those affected by an eating disorder. 

How are we doing this?

In order to achieve the goals of the CEDPSP, we are implementing a rigorous methodology that has been used worldwide. The James Lind Alliance (JLA) methodology brings those with lived experience, caregivers, and healthcare professionals together in Priority Setting Partnerships (PSPs). These partnerships identify and prioritize unanswered research questions that they agree are the most important in a specific field. The aim of this is to help ensure that those who fund health research are aware of what really matters to patients, caregivers, and healthcare professionals. Below is a diagram representing the step-by-step process for the Canadian Eating Disorders PSP:
For more information about the James Lind Alliance method, please consult the JLA Guidebook, freely available at http://www.jla.nihr.ac.uk/jla-guidebook/
 
Why are we doing this?

The CEDPSP builds on established partnerships ‎between professional organizations dedicated to advancing knowledge and strengthening the voice and visibility of eating disorders. Our team is excited to lead a first of its kind Canadian PSP initiative in the field of eating disorders, applying an objective methodology and step-wise approach to prioritizing research questions designed to potentially shape eating disorder research endeavours in the future. Our approach is participatory, inclusive of opinions and voices from various stakeholder groups, and anchored in existing and future partnership development.
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If you have any questions, please send us an email at:

cedpsp@cheo.on.ca
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